House Speaker John Boehner and his tea party friends shut down the U.S. government
because of people like me. I am the mother of an insurance hog, someone
who could have blown through his lifetime limit of health coverage by
the time he was 14. My son has managed to survive despite seemingly
insurmountable challenges, and he wears his preexisting condition like a
Super Bowl ring.
Mason, now 16, was probably born with his brain tumor. We
discovered it six years ago. Biopsies showed a slow-growing mass, which
was the good news. The bad news was that the tumor could not be removed
because it had grown around essential structures in his brain. Under the
care of some of the country’s finest specialists, Mason had frequent
scans. There was little we could do between tests but hope for the best.
Like other children his age, Mason played basketball, argued with his
siblings and avoided cleaning his bedroom. He managed to undergo
chemotherapy for eight months without getting too sick. He insisted on
finding ways to laugh, saying things like: “I have brain cancer. What’s
your problem?” It was an uneasy peace — until the tumor ruptured in
December 2010, three years after his initial diagnosis, and Mason
suffered a massive cerebral hemorrhage.
The biggest fear for families such as mine is that we will lose our health insurance and be rendered uninsurable because one of us has been sick. The Affordable Care Act does away with dreaded clauses barring preexisting conditions. It also enables us to keep Mason on our insurance until he is 26; then, he will be able to purchase his own coverage on an insurance exchange. At least, that was the plan until last Tuesday, when the government was shut down in protest of such excesses.
As far as the brain tumor goes, our family might have drawn the short straw. Maybe our story lacks a certain universal appeal. People might thinking to themselves, “I’m so sorry that happened to you, but odds are it won’t happen to me.” I hope it doesn’t, really.
But having lived in hospitals with Mason for months, I have seen that bad things — accidents, freak illnesses — happen to smart, cautious and otherwise undeserving people. It’s one thing we all have in common. We are fragile beings. So what is wrong with allowing us to purchase a financial safety net? What’s so un-American about that?
If I could get John Boehner and Ted Cruz on a conference call, I would explain this to them. I would tell them that, while they were busy trying to derail the Affordable Care Act over the past two years, Mason has again learned to walk, talk, eat and shoot a three-point basket.
No comments:
Post a Comment